Born a Fighter
Mack came into the world with a rare congenital heart defect called hypoplastic left heart syndrome. From his very first breath, he showed us he was here to fight.
We are Erica and Chad Pecora, and our world changed the day our son Macklin was diagnosed with a rare and serious congenital heart defect called Left Ventricular Non-Compaction Cardiomyopathy.
Nothing prepares you for that moment. One minute you think you’re at a routine doctor’s visit. The next you’re learning a new language — words you’d never heard, procedures you couldn’t pronounce, odds no parent should ever have to hear out loud. But inside the walls of the CCU at Ann & Robert H. Lurie Children’s Hospital of Chicago, we found something we never expected.
We found nurses who knew our son’s name before they knew ours. Who explained things twice without ever making us feel small for asking. Who talked to Mack like he was a person, not a patient, even when he was too little to answer. Who stayed past their shift because leaving didn’t feel right. Who put a hand on your shoulder at exactly the moment you needed someone to.
We found doctors and surgeons who never rushed us, never talked over our heads, and never once made us feel like we were asking too many questions. Who gave us the truth straight, and then gave us somewhere to stand with it.
We found a team that fought for our son like he was theirs — and then, on the hardest days, held us up too.
We found other families in those hallways. Parents running on no sleep and pure will, who still made room to check on us. We passed each other at the coffee machine and in the waiting room and somewhere along the way we stopped being strangers. Those families are our friends now. They’re the people we text at midnight. They’re the ones who understand without needing the backstory.
And we found the kids.
There is something about these children that’s hard to put into words. They are braver than anyone twice their size, and they don’t know it. They wake up from things that would level a grown adult and ask what’s for breakfast. They make a hospital room into a place worth playing in. They know every nurse by name. They have a light in them that you don’t forget once you’ve seen it — and if you’ve ever stood in that hallway, you’ve seen it.
That’s what the CHD community gave us. They welcomed us on the worst day of our lives — and then they carried us.
The Mighty Mack Foundation is how we carry it forward.
It’s named for our son, but it’s built for all of them. For every family sitting in a waiting room right now with their phone face-down on their knee. For every warrior who’s been through more before kindergarten than most people face in a lifetime. For every parent who needs to hear the four words that saved us: you are not alone.
“Mack taught us what strength really looks like. Now it’s our turn to fight for every kid who’s fighting.
— Erica & Chad Pecora, Founders
One mighty mission. Every brave heart.
Mack came into the world with a rare congenital heart defect called hypoplastic left heart syndrome. From his very first breath, he showed us he was here to fight.
Already brave beyond his years, Mack has faced open-heart surgery before his first birthday. The doctors and nurses at Lurie's call him their "littlest superhero" — and the name stuck.
Mack is waiting on another open-heart surgery. We don't know yet what comes next — only that he's still here, still fighting, and still the toughest person in any room he's in.
He giggles. He babbles. He grips every nurse's finger like he's got something to prove.
Whatever comes, we keep going. For Mack, and for every heart warrior still in the fight.
Four promises that drive everything we do — for Mack and every heart warrior.
Mighty Mack stands beside every CHD family, raising our voices to push for research funding, better care options, and the belief that every heart warrior deserves the future they were born to have.
Learn More →Knowledge is power, especially when it comes to matters of the heart. Mighty Mack helps share vital information about congenital heart defects, treatment advances, and what to expect.
Learn More →No one should walk this road alone. Mighty Mack brings CHD families together — linking parents to parents, kids to kids, and hearts to hearts — in every corner and every country.
Learn More →Every heartbeat is a victory. From hearts that beat strong after surgery to quiet wins and big milestones, we celebrate the courage and the strength of every heart warrior.
Learn More →The Mighty Mack Foundation was founded in honor of Mack and every child like him. We exist to lighten the load on families navigating pediatric heart disease — and to fuel the research that will one day make stories like Mack's the exception, not the rule.
Meal cards, lodging, and gas grants for families living at the hospital.
Funding pediatric cardiology research at leading children's hospitals.
Every newly-diagnosed kid at Lurie's gets a Mighty Mack cape of their own.
For more than a year, Mack has spent most of his days at Lurie Children's — a place where superheroes wear scrubs, where every hallway has a story worth telling, and where a family in the hardest stretch of their life is never left to face it alone.
The cardiac team at Lurie's has become Mack's extended family. The nurses know exactly how he likes to be rocked to sleep. The child life specialists know which lullabies calm him during an echocardiogram. The doctors know that no medical chart can capture how big this little kid's heart really is.
We've lived what these families live. We know what it's like to sleep in a chair, to leave the house in a rush and realize three days later you never packed a toothbrush, to watch the ordinary parts of life pile up while you're somewhere else entirely. The small things fall apart fast — and they're the things nobody has the energy to think about.
That's where we come in.
The Mighty Mack Foundation exists to lift some of that weight. When we learn of a family in the middle of it, we do what we can — taking care of a few of the necessities and small comforts that make a hard stretch a little easier to carry, so a parent can put all of their energy where it belongs: on their little warrior.
We're just getting started. But every dollar raised goes toward reaching one more family, one more hospital hallway, one more heart warrior who needs to know someone out there is in their corner.
Know a family who could use us? Tell us about them. info@themightymackfoundation.org
Three ways to power up Mack's mission — pick your superpower.
Help host events, assemble comfort capes, or read to kids on the cardiac ward.
Sign up →Become an organ donor. One decision can save up to eight lives — including Mack's.
Learn how →Doctors, nurses, and a roomful of homemade-caped supporters marched down the cardiac hallway. Best first birthday ever.
To the parents who sew them, the volunteers who pack them, and the kids who wear them: thank you. You are the league.
Our biggest research grant yet, supporting work that could change outcomes for kids on the transplant list.
Whether you want to volunteer, host an event, sew a Comfort Cape, or just stay in the loop on Mack's journey — we'd love to have you. Fill out the form and someone from the team will reach out within 48 hours.