Bring a question list
Keep a running note of symptoms, medication changes, activity questions, and worries so nothing gets lost in a busy appointment.
Knowledge is power, especially when it comes to matters of the heart. Mighty Mack helps share vital information about congenital heart defects, treatment advances, and what to expect — empowering parents, kids, and communities with the understanding they need to face whatever comes next.
Congenital heart defects affect nearly 1 in 100 births. We share the facts, the warning signs, and the stories that help families recognize CHD early and seek the right care.
Medical science is making incredible strides in pediatric cardiology. We translate the latest research and treatment breakthroughs into language families can understand and use.
From first diagnosis to long-term care, we provide resources and guides so parents feel confident asking the right questions and making informed decisions for their child.
We bring CHD education to schools, workplaces, and community groups — helping people understand what heart warriors face and how they can help support CHD families.
“The more we know, the better we can fight — and the more we can hope.
— The Mighty Mack Foundation
A quick-reference wall of practical reminders families can use during appointments, hospital stays, and everyday CHD care conversations.
Keep a running note of symptoms, medication changes, activity questions, and worries so nothing gets lost in a busy appointment.
Save names of diagnoses, surgeries, procedures, medicines, and care team contacts in one easy place for quick reference.
It is always okay to ask the care team to repeat, draw, or explain medical terms in everyday words until they make sense.
Give trusted caregivers, teachers, and coaches clear written guidance about restrictions, warning signs, and emergency contacts.
CHD care can feel heavy. Make space for questions, breaks, and honest conversations with kids in age-appropriate ways.
Connecting with someone who understands the CHD road can make the next appointment, surgery, or milestone feel less isolating.